Patients and doctors need better education on leprosy

Delays in diagnosis of more than 10 years have been reported in the country. Research also indicates that reducing the social stigma attached to the infectious, but curable, disease could encourage sufferers in Brazil to go to their doctor and seek early treatment for the condition.

The study – which focussed on leprosy referral clinics in three Brazilian states - found that people who suspected they had leprosy, but feared being shunned by their community, were 10 times more likely to wait longer before consulting a doctor for their symptoms.

Researchers also found that 42 per cent of people who took part in the study reported that doctors had not initially diagnosed leprosy, also known as Hansen’s disease, commonly misdiagnosing conditions such as rheumatism and skin allergy.

They also found that many patients appear to be still ignorant about the symptoms of leprosy, which is considered to be a disease affecting mainly poor people. This social group in Brazil has low levels of literacy - researchers suggest that incorporating graphics and animation into patient education tools may help to tackle the disease.

Researchers at the University worked with counterparts in Brazil, including the Instituto Lauro de Souza Lima, in Bauru, Sao Paulo; the Faculdade de Medicina de Marilia (FAMEMA), Sao Paulo; and Centro Referencia em Tuberculose e Hanseniase, Mato Grosso. Their paper was published by PLoS (Public Library of Science).

Lead author Mary Henry, from the University of Birmingham, said: “Leprosy is a leading cause of preventable disability worldwide and endemic in Brazil, which ranks second only to India in the amount of cases recorded.

“This study highlights the need for further patient education on the disease’s symptoms, as well as the reduction of stigma to encourage patients to seek earlier medical care.  It also suggests the need for primary care clinicians to be better educated about the symptoms of leprosy.

“Leprosy is curable, but early diagnosis is essential. Delays in identifying and treating the condition mean that the disease is more likely to spread and the patients in question may suffer more severe disabilities.”

The study aimed to identify factors associated with patient and health system delays that could be contributing to the overall delayed diagnosis of leprosy in Brazil.

It found that stigma towards leprosy sufferers remains despite the availability of a cure. Fear of isolation was likely to lead to greater delay, with some patients concealing their symptoms and avoiding treatment for fear of social exclusion.

The study recommends that national health programmes should be used to inform the public that leprosy is curable and preventable. Nearly half of participants (45.1%) waited before consulting a doctor because they did not believe their symptoms were serious.

It discovered that the main reason for longer health system delays was misdiagnosis and recommends that clinicians would benefit from further education about leprosy symptoms other than insensitive skin lesions.